Digital Health
A Mother’s Journey

A Mother’s Journey

Megan is the mother of a child with a rare genetic syndrome. Here, she shares her story of overcoming many obstacles – from high fees to puzzling policies and procedures – to get copies of her daughter’s medical records so she can better coordinate her care.

Survey Says: We’re Missing an Opportunity to Engage Women in Their Health Care

A Tale of Two Tracers

This week, we’re kicking off our series of Tracer stories by sharing stories from two patients who requested their health data and reported back to us about their experiences.

Survey Says: We’re Missing an Opportunity to Engage Women in Their Health Care

“Meaningful Use” of Health IT: What the FACA?!

What happens when you put a couple of dozen doctors, technology vendors, consumer advocates, researchers, public health officials, state legislators and others in a room and ask them to agree on exactly what it means to ‘meaningfully use’ electronic health records? Not as many fights as you’d think. And thanks to the Federal Advisory Committees Act [1] – which created the FACAs responsible for creating the first draft of Meaningful Use criteria – we know!

Moving Forward on Health IT

Moving Forward on Health IT

Delay access to health information you need now?  Pause efforts to ensure that an emergency room can get your medical data from your doctor immediately, if the need arises?  Patients and consumers say no.

Why Health IT is Truly the Cat’s Meow

Why Health IT is Truly the Cat’s Meow

Those of us who work in the health IT world spend our days analyzing policies, creating advocacy strategies, and talking about meaningful use criteria, quality improvement, and care coordination till we’re blue in the face. But how does that play out when we leave the office? More often than not, we bring our work home.

National Partnership for Women & Families, 50th anniversary logo